Case Study: Orchard Therapeutics accelerates ultra-rare disease diagnosis with Veeva Systems

Orchard Therapeutics Accelerating Ultra-Rare Disease Diagnosis with Real-Time Data and Analytics

Orchard Therapeutics, a Kyowa Kirin company, needed a faster way to identify healthcare providers who might have patients with ultra-rare early-onset metachromatic leukodystrophy (MLD). Because the disease is rapidly progressive and often diagnosed too late for treatment, Orchard wanted more timely data to support diagnosis awareness and outreach. Veeva Systems’ Veeva Compass Patient data was used as the input for Orchard’s machine learning model.

With Veeva Systems and Veeva Compass Patient, Orchard built a real-time, analytics-driven workflow that refreshes claims data daily and helps validate de-identified patient leads. The solution now generates three to five lead alerts per week, enabling Orchard to reach the right providers sooner and focus education efforts where they can have the most impact. Orchard also validated the model’s ability to predict potential MLD patients using ICD-10 markers and plans to keep using Veeva Compass Patient to support ongoing awareness and earlier diagnosis.

Orchard Therapeutics

Brian Campbell

Executive Director of Global Commercial Operations