Case Study: CureDuchenne advances DMD research and patient engagement with Worthwhile

CureDuchenne reaches 0.006% of the US population with Worthwhile

CureDuchenne, a leading research and support organization devoted to eradicating Duchenne muscular dystrophy, faced the challenge of systematically collecting scarce patient information and biological samples from a rare disease population. Worthwhile worked with them to create a patient survey portal and administrative data hub to address this.

Worthwhile's solution provided tools for sensitive patient onboarding, validation, and robust reporting, which enabled the identification of patient subcategories and trends. This made patient data meaningful and actionable for researchers, allowing them to draw connections between survey responses and biobank samples and bringing the search for a cure closer than ever.

CureDuchenne