Case Study: Metastatic Breast Cancer Alliance (MBC Alliance) achieves stronger patient engagement and richer patient data insights with Greenphire’s Patient-Powered Research Registry

Metastatic Breast Cancer Alliance Bolsters Patient Engagement and Data Insights with Greenphire’s Patient-Powered Research Registry

The Metastatic Breast Cancer (MBC) Alliance, a coalition of nonprofits, industry partners and patient advocates, wanted deeper insight into the MBC patient journey and a better way to keep patients connected to research and support. Because metastatic disease has historically received less research attention than primary breast cancer, the Alliance needed a patient-centered platform to collect treatment and quality-of-life data while maintaining ongoing engagement; they launched MBC Connect and chose Greenphire’s Patient-Powered Research Registry to build it.

Greenphire’s mobile- and web-based registry delivered a bi-directional experience—interactive content, surveys, treatment tracking, eConsent, insights and passive trial matching—yielding strong engagement and actionable data: survey completion rates >70%, more than 600 participants reporting 3,700+ treatment lines, ~1,300 eConsents, and roughly 25% of users engaged in trial matching. The platform’s multi‑device access and timely insights (including COVID-19 updates) have strengthened patient connection and produced a richer dataset to drive research, trial awareness, and improved care for people with MBC.

MBC Alliance

Laurie Campbell

Executive Director